big day.

28 03 2008

***warning- graphic***Today was a big day for Mr. Miles. He had major surgery to repair his encephalocele. For those of you who don’t know what that is, Miles was born with  a little bubble of skin on his skull that contained spinal fluid and some brain tissue. To repair this they had to take a portion of his own skull and cut it out and place it over the opening (the encephalocele) They then put a dissolvable plate in place of the missing skull. This should heal within 12 months and dissolve on it’s own. Pretty amazing!

It has been a long day. We had to be here at 10 am. His MRI was scheduled for noon, but didn’t get underway until 1. The surgery started at 2:30 or so and he was done around 4. We were told the surgery itself could take 5 hours or more, so things must have gone much better than planned.

We didn’t get to see him until after 5pm. And our poor little guy was in such pain! He just couldn’t relax. Every time he would come close to falling asleep, he would jerk back awake- screaming in pain.  Needless to say, this was the worst part of our day. By 9pm, he had started to calm down and he has now been sleeping off and on since then (it is about 2:30am).  He still wakes up occasionally in pain, but has gotten much…much better.

It has been so hard to see him in such pain and not be able to do anything for him. I can’t even hold him right now. His first surgery (the day he was born) was much easier. They say it gets worse and worse the older they are. I expected it to be hard, but until it actually happens- you just  can’t know how hard it will be.

We are so thankful that at 2 1/2 months old he will not remember this pain. We also know that this surgery had to be done and will definitely help him in the long run. Thank you so much for your many prayers. I am confident that without prayer, we would be completely miserable right now. The power of prayer is an amazing, unexplainable gift!

Today I have been clinging to this verse: “For I know the plans I have for you”, declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.” Jeremiah 29:11




4 responses

28 03 2008

Oh, my friend, Sherri,

My love and prayers go out for you and your family today. Hang in there, sweetie! Thanks for taking the time to provide the updates, so we can pray for you!

Love, Gretchen

28 03 2008

That’s great!! We’ve been praying for this and will continue to pray the entire family!
Love you all!!
-Stef & Mark

29 03 2008

I have your family in my thoughts and prayers 🙂

26 06 2009
peace. «

[…] put my mind at ease.  He reassured me that this surgery would not be as painful for Miles as his encephalocele repair because there are no nerves where they will be operating. Actually, when I think about it- that […]

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