Well, we had our appointment at craniofacial clinic yesterday. I was really hoping that we would go, they would answer a bunch of questions and I would feel at ease and peaceful about these upcoming surgeries. Not so…I am terrified. The plan is for them to basically take Miles’ skull apart and reassemble it in a more “normal” shape. Then 6 months later to do the same thing with his forehead. This surgery is mostly cosmetic, but all the doctors I’ve talked to seem to think it will help him to be able to walk sooner. I really do want my son to have every possible chance to have the very best life possible, but this is scary stuff. Please keep us in your prayers. Pray that we would be following hard after God’s will. Pray that the actual surgeries would go perfectly and that Miles would heal quickly. The first surgery will most likely be in June sometime. Gulp.
I’m terrified.24 03 2009