Nope. He’s not walking yet :). Today, his 2 physical therapists (one from the public schools and one from a private practice) collaborated about what to do with Miles. It is so nice that they are working together! They both decided it would be best for him to get some orthotics (leg braces). The funny thing is that he doesn’t physically need them. They both agree that it isn’t a matter of strength or tone. They think it’s more of a confidence/stubbornness thing! So, they want to try orthotics as a way of trying to make him feel more stable and confident. They also want to try him in a walker like he used to have, a walker with no support for his trunk. I told them, “Hey, we will try anything!” We are excited to see what happens. We know that he will eventually walk, but he sure is taking his sweet time!
Oh, and when that little boy does walk, we are having the biggest party ever! Both for him, as it will be a huge accomplishment, and for me (and everyone else who has to carry him!). He is weighing in at about 40 pounds!!!
When I first found out about his diagnosis, and I read that a lot of hydrocephalic children didn’t walk until they were 2, I was absolutely terrified. You know, back when the words “delayed” and “disabled” made me feel sick to my stomach?
Oh, how things change! We will be thrilled if he walks by 3. And if he doesn’t, we will still know that we are blessed that he will eventually walk at all. God only knows why some children with this disease are affected so differently. Even if he doesn’t walk until 4, we will still consider that a miracle. He is getting braver and stronger, so it’s only a matter of time.
He is starting to use some complete sentences. This is really cute, because they are usually about something he wants. “I want to go see horses” was his longest so far! His expressive language is really taking off. He still struggles with receptive language. It is very difficult to get him to do things like following instructions or putting toys away in a container, but he is getting better.
Can I just get something out in the open? At times I feel almost guilty bragging about Miles when so many other children out there have it so much worse. But I know, that if those mothers were in my shoes they would do the exact same thing. He is a miracle, all children are. The fact that we get to live this life is a miracle. And I will never, ever take for granted how well Miles is doing. Even if compared to “typical” children he is doing poorly. I have to celebrate him. He is what has been given to me and I cherish him!