eat.make.live.

a day at the hospital. November 20, 2009

Filed under: hydrocephalus., miles. — sherrilee @ 1:28 am

Miles had his eye surgery today. We have known this day would come since he was about 4 months old. It was nice to finally get it over with. We woke up early and drove to Omaha. We arrived at the hospital and got our “CARES” room. This has been the worst part in the past because Miles loves to crawl and explore and we are stuck in a small room with a big boy  uncomfortably restrained in a stroller. Today, we decided to let him crawl and explore the room. He was a much happier little guy.

Then Miles and Mommy had a little photo shoot. You can really see how his left eye crosses inward.

On the way home, Miles was NOT happy. The nurses gave us elbow splints to keep him from rubbing his eyes. Rubbing your eyes can cause the stitches to burst! yikes!

About 10 minutes into our drive home, we pulled up next to a semi-truck. I heard a quiet little voice in the back say, “choo-choo”- that’s when I knew he was doing just fine! By the time we got home, had a little dinner and watched a little veggie tales, Miles had figured out how to crawl with his elbow splints!

 

 

my favorite book. November 14, 2009

Filed under: hydrocephalus., miles. — sherrilee @ 1:44 pm

Here is a video of Miles and I reading his favorite book. You can hear him say a lot of new words (in his own way :) ) and get a glimpse of his sweet little personality!

 

children’s museum. November 14, 2009

Filed under: greta., miles. — sherrilee @ 4:21 am

Today we went to the Children’s museum with Greta’s preschool class. I took lots of great photos with her friends, but I won’t post them on here (I’d have to get consent from each parent first). Here are a few shots of the kids playing.

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Of course, Greta found the cakes. This girl loooooves cake. For her birthday last year, she received 2 wooden cake sets from 2 separate people.  She played with them obsessively for about 6 months until she moved on to making her own cakes out of play-dough. Then of course there was the time she put some fresh parsley in an angelfood pan and asked me to put it in the oven. She was genuinely disappointed when I pulled the pan out of the oven and it hadn’t turned into an actual cake.

Then there is Miles and his choo-choo’s. This is his new favorite word and he makes sure to let us know whenever he sees a choo-choo (semi-trucks are also choo-choo’s) which is quite often, especially on the interstate on the way to Mommy’s work.

 

 

cruising. November 12, 2009

Filed under: hydrocephalus., miles. — sherrilee @ 2:59 am

Miles is still not pulling himself up as much as he was about a month ago, but once he is  up he now comfortably cruises around.  He will have an MRI sometime this month to check if he has a tethered spinal cord.  When he stopped pulling himself up altogether a few weeks ago, we were very frustrated because every time we could get him into a standing position, he would cry and repeat “down, down, down!”.  He no longer objects once he is standing, but still rarely will pull himself up to stand. We are baffled, but it is now our goal to work on him getting up and down to the standing position by himself. Here is a video of his newest accomplishment!

 

 

crayon box. November 9, 2009

Filed under: Uncategorized — sherrilee @ 4:51 am

I am absolutely paranoid of my house looking like a day care. I am constantly trying to find clever ways of hiding things from sight.  We have two ottomans (ottomen?:)) in the living room with lids that are removable.  This is where we keep toys.  Greta is in a huge coloring phase right now. It seems that the crayons are always out on the dining room table. For my birthday this year, my friend dropped off a cookbook,  and this lovely box full of gourmet cupcakes.

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This lovely, feminine box now houses our crayons!

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Good-bye 2009. November 9, 2009

Filed under: flowers., make. — sherrilee @ 4:19 am

Well,  at least the 2009 wedding season.  This weekend marked the last wedding of 2009. It has been a great season that started with our first annual Sherbondy Flowers Wedding Fair. We have 2 months off and then will start our 2010 season in January. We have a lot of exciting things in the works for our 2010 Wedding Fair.  Stay tuned for more photos!

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www.sherbondyflowers.com

 

Greta’s new role. November 9, 2009

Filed under: greta. — sherrilee @ 3:11 am

This is her version of Mommy. Not sure what she is trying to say about my cheeks :)

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Happy Halloween! November 1, 2009

Filed under: greta., miles. — sherrilee @ 1:59 am

The kids and I (Daddy had a performance) had a wonderful Halloween!

First we went to Aunt Jessica’s for a yummy dinner and LOTS of candy. Then we “borrowed” her neighborhood and went trick-or treating.

Miss Greta was a ballerina.

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Who naturally did this with her arms whenever she yelled “trick or treat”

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Mr. Miles was the oh-so-hip, DJ Lance.

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It was the perfect fall evening for a stroll with my two favorite cuties.

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You’re a good man, Daddy. November 1, 2009

Filed under: family., greta. — sherrilee @ 1:46 am

My husband is playing the role of Charlie Brown in You’re a Good Man, Charlie Brown for a local theatre company.  Greta and I attended the opening night show. We made sure to stop at the ice cream shop below the theatre before the show. I am very proud of my husband. He has worked so hard, and the show was fabulous! When I asked Greta, what her favorite part of the show was, she said, “Daddy!”. Of course :)

Dad and Greta

But then she thought about it and said, “And ice cream, too!”

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**sorry, friends- no flash photography allowed at the actual show**

 

Updates. October 29, 2009

Filed under: Uncategorized — sherrilee @ 9:41 pm

First of all, let me update you on our little friend, Matthew. His is now in  serious, but stable condition and his latest EEG showed no seizure activity. He is still sedated to give his brain and body a rest. Please do continue to pray for this wonderful little boy that the doctors would make wise decisions and that he would be back at home with his siblings!

Miles had 2 big Dr. appointments this week. On Tuesday, we met with Dr. Wright (Neurologist). She was pleased with how Miles is doing, but suspects that his backtracking on pulling up to stand may be because he is in pain from a tethered spinal cord. She ordered an MRI so we will know for sure. This of course would mean another surgery. We are praying that Miles is just being tempermental and that this is NOT the case. They will do the MRI on the day of his eye surgery (Nov. 19) because he will have to be sedated anyway. We will also be able to have the MRI read by Dr. Puccioni that same day.
Today we met with Dr. Puccioni (Neurosurgeon) and he thought Miles looked great. He dialed the pressure on his shunt down again. This will allow the fluid to drain even more quickly. The have had to slowly adjust it to a faster setting since his last big surgery. Adjusting it too quickly can lead to things collapsing inside the brain.
So, overall two good appointments. We are just praying that he does not have a tethered spinal cord.

Tonight, Greta and I have a date for You’re a Good Man, Charlie Brown, starring…..Daddy! I’m sure I will be posting photos soon :)