Well, we have a few updates from the last couple of weeks. We recently met with Dr. Legge (Ophthalmologist) and set up Miles’ eye muscle surgery for November 19th. It will be nice to have this out of the way. It will be the last of the planned surgeries. With a shunt, there is always a chance of an emergency surgery, but so far- so good.
On last Wednesday, one of Miles’ physical therapists decided it would be best not to meet anymore for awhile. Most of these sessions are spent with her trying to get Miles to stand and play, and Miles trying (and succeeding) to get away and explore. The result is that we are making the whole standing thing a very negative experience. She doesn’t want to see Miles until he is standing a lot more.
Then, yesterday- Miles’ other physical therapist and I figured out why Miles has been so wishy-washy with pulling up to stand. Before his big cranial remodeling surgery, he was pulling up to stand a lot. Then it stopped. We realized that we had started his dilation drops around the same time. He has recently been pulling up to stand a lot again, but last week, stopped! It was also last week that we stopped using the dilation eye drops…hmmmm. We are pretty sure that the changes in his vision are causing him to be less confident and to back track in this area
It will be nice to have the surgery over with and quit messing with his eyes!
Miles continues to do great in his Speech therapy sessions. He now has close to 50 words and is starting to put 2 word phrases together! His favorite words this week are: “church”, “floor” and “see”. His therapist no longer wants to see him twice a week, only once.
And, finally, on Sunday we moved Miles from the “crawler” nursery at church to the “toddler” nursery. Even though Miles is not yet “toddling”, we felt he would fit in a little better in that environment. He did very well and one of my friends even said that he made friends with another little girl and had to be closely supervised in the tent
