These are posts I’ve written about Miles’ hydrocephalus:
Looking Back (video)
Challenge to parents of children with Special needs
Parenting a Child with Special Needs
Here are some hydrocephalus websites that have been valuable to me.
Information:
Community:
Other Families:
Miles’ Medical Updates:
keyword-MilesJacobLee
eat.make.live. 
[…] Hydrocephalus. […]
I also have hydrocephalus…I wouls like you to see I have some links to support pages you may be interested in. Hope they help.
Monica,NC
I came across your blog while looking into something on babycenter and I’m so grateful for you taking the time to document your son’s amazing life. I have a 3 month old with congenital hypothyroid and I’m embarrassed to admit I’ve been thinking so much about how his potential problems will affect me and our family. This week has been a big turning point for me. I’m really trying to work on just loving him more every day, enjoying the miracle that he is and growing with him. Thanks you for your insightful and inspiring posts.