Hydrocephalus.

These are posts I’ve written about Miles’ hydrocephalus:

Mr. Miles

Hydrocephalus

Big Day

My Amazing Little Boy

Baby Blues

4 months

Good News

Miles’ New Feat

5 months

Lessons

Workin’ Hard

Blessed

Arrrrrgh, Mateys!

Changing Views

Multitasking

Talk About it

Wonderful Nancy

New Toys

Home

Show Off

22 lbs.

Sitting Pretty

Looking Back (video)

Grrrrr!

10 Months

Bath Time

‘Tis the Season

Hello 2009

Party Time!

What a day

Creepy crawler

As promised

Dr. “Right”

Lil’ Trouble maker

I’m terrified

Not the best

Crawling!

Progress

Peace

Cranial Remodeling, Day 1

Cranial Remodeling, Day 2

Cranial Remodeling, Day 3

Cranial Remodeling, Day 4

Going Home

1 week post-op

2 weeks post-0p

1 month post-op

Yes, I can!

A declaration of love

yakety yak

a growing list

couple new tricks

Miles updates

cruising

A day at the Hospital

On the day you were born

A new normal

Wait

Walk on

Challenge to parents of children with Special needs

Walking and Talking

Right on Track

The Miles Lee Post

Parenting a Child with Special Needs

Eye Update

Miles is Famous!

Give and Take

Walking and Talking News

School Talk

Information Overload

Neurosurgeon News

Through the Storm

Em-brace-able You

Here are some hydrocephalus websites that have been valuable to me.

Information:

www.nhfonline.org

www.hydroassoc.org

www.fetalhydrocephalus.com

www.oghats.com

Community:

www.babycenter.com

Other Families:

Elisabeth

Matthew

Cayman

Miles’ Medical Updates:

www.carepages.com

keyword-MilesJacobLee

3 responses

15 04 2009
top 5 posts. « eat.make.live.

[…] Hydrocephalus.   […]

22 05 2009
Monica

I also have hydrocephalus…I wouls like you to see I have some links to support pages you may be interested in. Hope they help.

Monica,NC

10 08 2011
M

I came across your blog while looking into something on babycenter and I’m so grateful for you taking the time to document your son’s amazing life. I have a 3 month old with congenital hypothyroid and I’m embarrassed to admit I’ve been thinking so much about how his potential problems will affect me and our family. This week has been a big turning point for me. I’m really trying to work on just loving him more every day, enjoying the miracle that he is and growing with him. Thanks you for your insightful and inspiring posts.

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